Year of Graduation

2018

Document Type

Thesis

Degree Name

MALS: Leadership

Directing Professor

Abrina Schnurman-Crook, Ph.D.

Abstract

Parents of children with a DDX3X genetic mutation encounter significant barriers when entering the school system. First, the recent discovery of DDX3X and lack of peer-reviewed research means educators lack knowledge about how to approach children with the DDX3X mutation. Secondly, DDX3X, like many disabilities, has a broad spectrum with some individuals exhibiting mild symptoms and others exhibiting more severe symptoms, meaning approaches must be highly individualized based on each child’s specific barriers. Third, children with the DDX3X mutation can present with comorbid diagnoses, such as autism spectrum disorder, movement disorders, or dyspraxia, which can create additional barriers. This essay serves as a reference manual for parents to use as they navigate elementary school services with their child with a DDX3X mutation.

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