Year of Graduation
Abrina Schnurman-Crook, Ph.D.
Parents of children with a DDX3X genetic mutation encounter significant barriers when entering the school system. First, the recent discovery of DDX3X and lack of peer-reviewed research means educators lack knowledge about how to approach children with the DDX3X mutation. Secondly, DDX3X, like many disabilities, has a broad spectrum with some individuals exhibiting mild symptoms and others exhibiting more severe symptoms, meaning approaches must be highly individualized based on each child’s specific barriers. Third, children with the DDX3X mutation can present with comorbid diagnoses, such as autism spectrum disorder, movement disorders, or dyspraxia, which can create additional barriers. This essay serves as a reference manual for parents to use as they navigate elementary school services with their child with a DDX3X mutation.
Snead, Jamie Staples, "LEADERSHIP STRATEGY MANUAL FOR NAVIGATING ELEMENTARY SCHOOL SERVICES FOR CHILDREN WITH A DDX3X GENETIC MUTATION" (2018). MALS Final Essays. 17.